{"id":2417,"date":"2024-08-12T18:56:01","date_gmt":"2024-08-12T16:56:01","guid":{"rendered":"https:\/\/www.multiplesclerosis.cz\/?page_id=2417"},"modified":"2026-01-07T14:21:12","modified_gmt":"2026-01-07T13:21:12","slug":"news","status":"publish","type":"page","link":"https:\/\/multiplesclerosis-app-aca9g6eranbfeyeg.northeurope-01.azurewebsites.net\/en\/aktuality\/","title":{"rendered":"News"},"content":{"rendered":"\t\t
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Aktuality ze sv\u011bta registru ReMuS<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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V\u00edtejte u aktualit ze sv\u011bta registru ReMuS, kter\u00fd sleduje pr\u016fb\u011bh roztrou\u0161en\u00e9 skler\u00f3zy v \u010cesk\u00e9 republice. Zde se zam\u011b\u0159ujeme p\u0159edev\u0161\u00edm na zpr\u00e1vy, v\u00fdzkumy a informace, kter\u00e9 maj\u00ed p\u0159\u00edm\u00fd vztah k registru a jeho v\u00fdsledk\u016fm. P\u0159esto\u017ee\u00a0<\/span>nem\u016f\u017eeme denn\u011b p\u0159isp\u00edvat nov\u00fdm obsahem, v\u011b\u0159\u00edme, \u017ee zde najdete hodnotn\u00e9 a relevantn\u00ed informace<\/span>.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n \n \"Od\n <\/a>\n \n \n <\/div>\n\n
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\n \n Od slune\u010dn\u00edho z\u00e1\u0159en\u00ed k boji proti roztrou\u0161en\u00e9 skler\u00f3ze: vliv hladiny vitam\u00ednu D na aktivitu roztrou\u0161en\u00e9 skler\u00f3zy <\/a>\n <\/h2>\n \n

Nov\u00e1 studie publikovan\u00e1 v \u010dasopisu Neurological Sciences p\u0159in\u00e1\u0161\u00ed poznatky o vlivu hladin vitaminu D na aktivitu roztrou\u0161en\u00e9 skler\u00f3zy (RS) v re\u00e1ln\u00e9 klinick\u00e9 praxi. Tato pr\u00e1ce, kterou vedla Prim. MUDr. Marta […] <\/p>\n

\n \n\n <\/i>\n \n 23. 12. 2025 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"ECTRIMS\n <\/a>\n \n \n <\/div>\n\n
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\n \n ECTRIMS 2025 s ReMuSem <\/a>\n <\/h2>\n \n

N\u00e1\u0161 registr se z\u00fa\u010dastnil 41. ro\u010dn\u00edku kongresu ECTRIMS, kter\u00fd se uskute\u010dnil 24.\u201326. z\u00e1\u0159\u00ed 2025 v Barcelona International Convention Center (CCIB). Tato nejv\u011bt\u0161\u00ed sv\u011btov\u00e1 akce v oblasti roztrou\u0161en\u00e9 skler\u00f3zy spojila \u0161pi\u010dkov\u00e9 […] <\/p>\n

\n \n\n <\/i>\n \n 18. 9. 2025 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n ReMuS v Americe \u2013 poster na presti\u017en\u00edm neurologick\u00e9m kongresu American Academy of Neurology <\/a>\n <\/h2>\n \n

ReMuS v Americe \u2013 poster na presti\u017en\u00edm neurologick\u00e9m kongresu American Academy of Neurology V dubnu roku 2025 prob\u011bhl kongres AAN, kde Dr. Dominika \u0160\u0165astn\u00e1 prezentovala v\u00fdsledky anal\u00fdzy. \u200e \u200e \u200e […] <\/p>\n

\n \n\n <\/i>\n \n 8. 4. 2025 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n Prob\u011bhl 6. Workshop registru ReMuS <\/a>\n <\/h2>\n \n

V p\u00e1tek 8. 11. se uskute\u010dnil v po\u0159ad\u00ed 6. workshop pro l\u00e9ka\u0159e, sest\u0159i\u010dky a administr\u00e1tory registru ze v\u0161ech RS center \u010cesk\u00e9 republiky. V hotelu Novotel v Praze se dostalo na […] <\/p>\n

\n \n\n <\/i>\n \n 8. 11. 2024 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a>\n <\/span>\n <\/div>\n
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\n \n \"Seznamte\n <\/a>\n \n \n <\/div>\n\n
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\n \n Seznamte se s registrem ReMuS <\/a>\n <\/h2>\n \n

Seznamte se s registrem ReMuS Pro prezentaci registru ReMuS na mezin\u00e1rodn\u00edm kongresu o neuroimunologick\u00fdch onemocn\u011bn\u00edch ECTRIMS jsme p\u0159ipravili kr\u00e1tkou prezentaci, kter\u00e1 v\u00e1m poodhal\u00ed, co v\u0161echno se skr\u00fdv\u00e1 pod pokli\u010dkou tohoto […] <\/p>\n

\n \n\n <\/i>\n \n 18. 9. 2024 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"\u00da\u010dinnost\n <\/a>\n \n \n <\/div>\n\n
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\n \n \u00da\u010dinnost kladribinu jako eskala\u010dn\u00ed strategie u RS v re\u00e1ln\u00e9 klinick\u00e9 praxi: Poznatky z \u010desk\u00e9ho celost\u00e1tn\u00edho registru ReMuS <\/a>\n <\/h2>\n \n

Nov\u00e1 studie publikovan\u00e1 v \u010dasopisu Journal of Central Nervous System Disease p\u0159in\u00e1\u0161\u00ed poznatky o \u00fa\u010dinnosti kladribinu p\u0159i l\u00e9\u010db\u011b roztrou\u0161en\u00e9 skler\u00f3zy (RS) v re\u00e1ln\u00e9 klinick\u00e9 praxi. Tato pr\u00e1ce vyu\u017e\u00edv\u00e1 data z \u010desk\u00e9ho celon\u00e1rodn\u00edho registru ReMuS a…<\/p>\n

\n \n\n <\/i>\n \n 24. 6. 2024 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n 1. Neuro-oftalmologick\u00e9 f\u00f3rum \u00fasp\u011b\u0161n\u011b prob\u011bhlo a neslo se v duchu up\u0159\u00edmn\u00e9 spolupr\u00e1ce mezi specialisty nap\u0159\u00ed\u010d obory <\/a>\n <\/h2>\n \n

1. Neuro-oftalmologick\u00e9 f\u00f3r, kter\u00e9 se konalo 20. \u010dervna 2024 v\u00a0Praze. Tento kongres byl v\u00fdznamn\u00fdm krokem sm\u011brem k prohlouben\u00ed spolupr\u00e1ce mezi neurology a oftalmology. Na\u0161\u00edm c\u00edlem bylo nejen sd\u00edlen\u00ed odborn\u00fdch znalost\u00ed, ale i rozvoj multidisciplin\u00e1rn\u00edho p\u0159\u00edstupu v p\u00e9\u010di o pacienty s\u00a0neuro-oftalmologick\u00fdmi probl\u00e9my.<\/p>\n

\n \n\n <\/i>\n \n 20. 6. 2024 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Neurologov\u00e9:\n <\/a>\n \n \n <\/div>\n\n
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\n \n Neurologov\u00e9: v\u0161ichni pacienti mus\u00ed dostat kvalitn\u00ed p\u00e9\u010di | Tiskov\u00e1 konference registru ReMuS 2024 <\/a>\n <\/h2>\n \n

Pokud \u010dlov\u011bk onemocn\u00ed roztrou\u0161enou skler\u00f3zou (RS), nem\u011blo by z\u00e1le\u017eet na tom, zda \u017eije v Chebu, Kol\u00edn\u011b nebo ve Fr\u00fddku M\u00edstku. Stejnou p\u00e9\u010di by m\u011bl dostat ve v\u0161ech centrech v cel\u00e9 \u010cesk\u00e9 republice. D\u00edky Registru pacient\u016f…<\/p>\n

\n \n\n <\/i>\n \n 29. 5. 2024 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a> | publikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Big\n <\/a>\n \n \n <\/div>\n\n
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\n \n Big Multiple Sclerosis Data network: mezin\u00e1rodn\u00ed v\u00fdzkumn\u00e1 s\u00ed\u0165 registr\u016f <\/a>\n <\/h2>\n \n

\u010cl\u00e1nek doc. Anny Glaser ze \u0161v\u00e9dsk\u00e9 univerzity Karolinska Institutet se zam\u011b\u0159uje na v\u00fdznam a p\u0159\u00ednos evropsk\u00fdch registr\u016f roztrou\u0161en\u00e9 skler\u00f3zy, konkr\u00e9tn\u011b projektu Big Multiple Sclerosis Data Network (BMSD), do n\u011bj\u017e je ReMuS aktivn\u011b zapojen…<\/p>\n

\n \n\n <\/i>\n \n 1. 4. 2024 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n Prob\u011bhl 5. Workshop registru ReMuS <\/a>\n <\/h2>\n \n

V p\u00e1tek 3. 11. se uskute\u010dnil v po\u0159ad\u00ed 5. workshop pro l\u00e9ka\u0159e, sest\u0159i\u010dky a administr\u00e1tory registru ze v\u0161ech RS center \u010cesk\u00e9 republiky. V hotelu Hermitage v Praze se dostalo na t\u00e9mata bezpe\u010dnostn\u00edho monitoringu pomoc\u00ed syst\u00e9mu MedDRA, prob\u00edhaj\u00edc\u00edch projekt\u016f…<\/p>\n

\n \n\n <\/i>\n \n 3. 11. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n Jedine\u010dn\u00fd koncert k 10 let\u016fm registru ReMuS <\/a>\n <\/h2>\n \n

Na p\u00f3diu refekt\u00e1\u0159e Emauzsk\u00e9ho opatstv\u00ed se b\u011bhem jednoho listopadov\u00e9ho ve\u010dera se\u0161li v\u0161ichni, kte\u0159\u00ed st\u00e1li nejen u zrodu registru ReMuS, ale tak\u00e9 jeho pokra\u010dovatel\u00e9. Hudebn\u00edho doprovodu se zhostila zp\u011bva\u010dka Kate\u0159ina Marie Tich\u00e1 se svou kapelou Bandjeez a hosty.<\/p>\n

\n \n\n <\/i>\n \n 17. 10. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Vliv\n <\/a>\n \n \n <\/div>\n\n
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\n \n Vliv zdravotnick\u00fdch syst\u00e9m\u016f na diagn\u00f3zu a pou\u017e\u00edv\u00e1n\u00ed l\u00e9\u010dby modifikuj\u00edc\u00ed onemocn\u011bn\u00ed u roztrou\u0161en\u00e9 skler\u00f3zy: pohled na p\u011bt evropsk\u00fdch registr\u016f <\/a>\n <\/h2>\n \n

T\u00fdm veden\u00fd Richardem Nicholasem se ve sv\u00e9 nov\u00e9 studii zam\u011b\u0159il na to, jak zdravotnick\u00e9 syst\u00e9my v r\u016fzn\u00fdch zem\u00edch ovliv\u0148uj\u00ed klinickou diagn\u00f3zu a p\u0159\u00edstup k l\u00e9\u010db\u011b roztrou\u0161en\u00e9 skler\u00f3zy…<\/p>\n

\n \n\n <\/i>\n \n 26. 9. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n Je kojen\u00ed p\u0159i RS \u0161kodliv\u00e9, nebo ne? Odpov\u011b\u010f na z\u00e1klad\u011b re\u00e1ln\u00fdch dat z \u010ceska <\/a>\n <\/h2>\n \n

Origin\u00e1ln\u00ed \u010dl\u00e1nek MUDr. Pavla Hrad\u00edlka, Ph.D. z Fakultn\u00ed nemocnice Ostrava vych\u00e1zej\u00edc\u00ed z dat registru ReMuS byl uve\u0159ejn\u011bn v odborn\u00e9m \u010dasopise Multiple Sclerosis and Related Disorders. Proto\u017ee vliv kojen\u00ed a jeho d\u00e9lky na pr\u016fb\u011bh roztrou\u0161en\u00e9 skler\u00f3zy je nejasn\u00fd, analyzovali auto\u0159i re\u00e1ln\u00e1 data o koj\u00edc\u00edch \u017een\u00e1ch s RS a pr\u016fb\u011bhu jejich onemocn\u011bn\u00ed…<\/p>\n

\n \n\n <\/i>\n \n 15. 6. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n P\u0159ekon\u00e1v\u00e1 po\u010d\u00e1te\u010dn\u00ed vysoce \u00fa\u010dinn\u00e1 l\u00e9\u010dba u roztrou\u0161en\u00e9 skler\u00f3zy strategii postupn\u00e9 eskalace l\u00e9\u010dby? Srovn\u00e1n\u00ed pacient\u016f s relabuj\u00edc\u00ed-remitentn\u00ed roztrou\u0161enou skler\u00f3zou v \u010desk\u00e9m a \u0161v\u00e9dsk\u00e9m n\u00e1rodn\u00edm registru roztrou\u0161en\u00e9 skler\u00f3zy. <\/a>\n <\/h2>\n \n

Odborn\u00fd \u010dl\u00e1nek Ing. Terezy Hrn\u010diarov\u00e9, Ph.D. z 1. l\u00e9ka\u0159sk\u00e9 fakulty Univerzity Karlovy se zab\u00fdv\u00e1 problematikou l\u00e9\u010debn\u00fdch strategi\u00ed u relaps-remitentn\u00ed roztrou\u0161en\u00e9 skler\u00f3zy. Ve sv\u00e9 pr\u00e1ci vych\u00e1z\u00ed z dat \u010desk\u00e9ho registru ReMuS a \u0161v\u00e9dsk\u00e9ho SMSR (Swedish MS Registry). Navazuje tak na…<\/p>\n

\n \n\n <\/i>\n \n 12. 6. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
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\n \n L\u00e9\u010dba roztrou\u0161en\u00e9 skler\u00f3zy za\u017e\u00edv\u00e1 revoluci | Tiskov\u00e1 konference registru ReMuS 2023 <\/a>\n <\/h2>\n \n

K bl\u00ed\u017e\u00edc\u00edmu se sv\u011btov\u00e9mu dni roztrou\u0161en\u00e9 skler\u00f3zy (RS) po\u0159\u00e1dal registr pacient\u016f ReMuS tradi\u010dn\u00ed tiskovou konferenci 25. kv\u011btna 2023. V r\u00e1mci konference byla prezentov\u00e1na nejaktu\u00e1ln\u011bj\u0161\u00ed data o RS a praktick\u00e9 po\u010diny, kter\u00e9 se v r\u00e1mci registru ReMuS poda\u0159ilo b\u011bhem 10 let jeho existence realizovat…<\/p>\n

\n \n\n <\/i>\n \n 25. 5. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a> | publikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \u010cesk\u00fd n\u00e1rodn\u00ed registr roztrou\u0161en\u00e9 skler\u00f3zy ReMuS: Trendy dat u pacient\u016f s roztrou\u0161enou skler\u00f3zou, u nich\u017e byla v letech 2013-2021 zah\u00e1jena prvn\u00ed chorobu modifikuj\u00edc\u00ed l\u00e9\u010dba. <\/a>\n <\/h2>\n \n

Roztrou\u0161en\u00e1 skler\u00f3za je v\u00e1\u017en\u00e9 neuroimunologick\u00e9 onemocn\u011bn\u00ed a data o jeho v\u00fdskytu a l\u00e9\u010db\u011b systematicky a dlouhodob\u011b vyhodnocuje n\u00e1rodn\u00ed registr ReMuS. Trendy v l\u00e9\u010db\u011b pacient\u016f v \u010cesk\u00e9 republice se zab\u00fdvala MUDr. Dominika \u0160\u0165astn\u00e1, Ph.D. ze V\u0161eobecn\u00e9 fakultn\u00ed nemocnice v Praze ve sv\u00e9m…<\/p>\n

\n \n\n <\/i>\n \n 28. 3. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Pod\u00edl\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Pod\u00edl a charakteristiky sekund\u00e1rn\u00ed progresivn\u00ed roztrou\u0161en\u00e9 skler\u00f3zy v p\u011bti evropsk\u00fdch registrech s vyu\u017eit\u00edm objektivn\u00edch klasifik\u00e1tor\u016f <\/a>\n <\/h2>\n \n

Sekund\u00e1rn\u011b progresivn\u00ed roztrou\u0161en\u00e1 skler\u00f3za (SPRS) p\u0159edstavuje v\u00fdznamnou f\u00e1zi v\u00fdvoje roztrou\u0161en\u00e9 skler\u00f3zy, kterou je v\u0161ak \u010dasto obt\u00ed\u017en\u00e9 p\u0159esn\u011b diagnostikovat. Studie, proveden\u00e1 v p\u011bti evropsk\u00fdch zem\u00edch, vyu\u017eila objektivn\u00edch klasifik\u00e1tor\u016f ke zji\u0161t\u011bn\u00ed pod\u00edlu a charakteristik SPRS v jednotliv\u00fdch registrech pacient\u016f s roztrou\u0161enou skler\u00f3zou, v\u010detn\u011b n\u00e1rodn\u00edho registru ReMuS. Zji\u0161t\u011bn\u00ed nazna\u010duj\u00ed…<\/p>\n

\n \n\n <\/i>\n \n 16. 2. 2023 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"B\u00fdt\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n B\u00fdt \u010di neb\u00fdt o\u010dkov\u00e1n: Riziko relapsu RS nebo NMOSD po o\u010dkov\u00e1n\u00ed a infekci COVID-19 <\/a>\n <\/h2>\n \n

V ned\u00e1vn\u00e9 studii publikovan\u00e9 v \u010dasopise Multiple Sclerosis and Related Disorders zkoumali v\u011bdci riziko relapsu u pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) a neuromyelitis optica (NMOSD) po o\u010dkov\u00e1n\u00ed proti COVID-19 a po prod\u011bl\u00e1n\u00ed COVID-19. Studie sledovala data z \u010desk\u00e9ho n\u00e1rodn\u00edho registru ReMuS a uk\u00e1zala…<\/p>\n

\n \n\n <\/i>\n \n 2. 7. 2022 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Anal\u00fdza\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Anal\u00fdza skupiny d\u011btsk\u00fdch pacient\u016f s relabuj\u00edc\u00ed roztrou\u0161enou skler\u00f3zou: \u00dadaje z \u010desk\u00e9ho n\u00e1rodn\u00edho registru <\/a>\n <\/h2>\n \n

Roztrou\u0161en\u00e1 skler\u00f3za m\u016f\u017ee postihnout i d\u011bti, a\u010dkoli se jedn\u00e1 o vz\u00e1cn\u011bj\u0161\u00ed formu tohoto onemocn\u011bn\u00ed. P\u0159ibli\u017en\u011b 3-10 % pacient\u016f rozvine roztrou\u0161enou skler\u00f3zu p\u0159ed dosa\u017een\u00edm v\u011bku 16 let. Tato studie se zam\u011b\u0159uje na anal\u00fdzu skupiny d\u011btsk\u00fdch pacient\u016f s relabuj\u00edc\u00ed formou roztrou\u0161en\u00e9 skler\u00f3zy, kte\u0159\u00ed zah\u00e1jili l\u00e9\u010dbu…<\/p>\n

\n \n\n <\/i>\n \n 18. 4. 2022 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
\n\n
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\n \n \"Je\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Je t\u011bhotenstv\u00ed u pacientek s RS bezpe\u010dn\u00e9 a jak\u00fd m\u00e1 vliv na pr\u016fb\u011bh RS? Re\u00e1ln\u00e9 poznatky z 1 533 t\u011bhotenstv\u00ed v \u010cesk\u00e9 republice <\/a>\n <\/h2>\n \n

T\u011bhotenstv\u00ed u pacientek s roztrou\u0161enou skler\u00f3zou (RS) vy\u017eaduje zvl\u00e1\u0161tn\u00ed p\u00e9\u010di, zejm\u00e9na pokud jde o rozhodov\u00e1n\u00ed ohledn\u011b l\u00e9\u010dby modifikuj\u00edc\u00ed onemocn\u011bn\u00ed (DMD) a poradenstv\u00ed t\u00fdkaj\u00edc\u00ed se obdob\u00ed po\u010det\u00ed, t\u011bhotenstv\u00ed a poporodn\u00edho obdob\u00ed. Tato studie se zam\u011b\u0159uje na anal\u00fdzu vlivu t\u011bhotenstv\u00ed, porodu nebo potratu na pr\u016fb\u011bh roztrou\u0161en\u00e9 skler\u00f3zy…<\/p>\n

\n \n\n <\/i>\n \n 28. 11. 2021 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
\n\n
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\n \n \"Roztrou\u0161en\u00e1\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Roztrou\u0161en\u00e1 skler\u00f3za, neuromyelitis optica a COVID-19: Pandemick\u00fd rok v \u010cesku <\/a>\n <\/h2>\n \n

Vzhledem k v\u00fdskytu nov\u00e9ho koronaviru COVID-19 vznikly obavy ohledn\u011b pr\u016fb\u011bhu tohoto onemocn\u011bn\u00ed u pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) a neuromyelitis optica spectrum disorder (NMOSD). Tato studie si kladla za c\u00edl vyhodnotit v\u00fdskyt, z\u00e1va\u017enost a rizikov\u00e9 faktory pro z\u00e1va\u017en\u011bj\u0161\u00ed pr\u016fb\u011bh COVID-19 mezi pacienty s RS a NMOSD…<\/p>\n

\n \n\n <\/i>\n \n 24. 6. 2021 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Covid-19\n <\/a>\n \n \n <\/div>\n\n
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\n \n Covid-19 a roztrou\u0161en\u00e1 skler\u00f3za pod drobnohledem | Tiskov\u00e1 konference registru ReMuS 2021 <\/a>\n <\/h2>\n \n

P\u0159esn\u011b 1918 pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS), kte\u0159\u00ed z\u00e1rove\u0148 onemocn\u011bli koronavirem, podrobn\u011b sleduj\u00ed l\u00e9ka\u0159i v Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou ReMuS. Od b\u0159ezna lo\u0148sk\u00e9ho roku zkoumaj\u00ed symptomy, l\u00e9\u010dbu i p\u0159\u00edpadn\u00fd vliv koronaviru na tuto specifickou skupinu lid\u00ed. Prvn\u00ed anal\u00fdzy ukazuj\u00ed, \u017ee RS nen\u00ed rizikov\u00fdm faktorem, ve vy\u0161\u0161\u00edm riziku se v\u0161ak ocitaj\u00ed pacienti star\u0161\u00ed, s t\u011b\u017e\u0161\u00edm neurologick\u00fdm posti\u017een\u00edm, ob\u00e9zn\u00ed a tak\u00e9 pacienti s ur\u010dit\u00fdm typem chronick\u00e9 terapie…<\/p>\n

\n \n\n <\/i>\n \n 25. 5. 2021 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\takce<\/a> | publikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Zm\u011bna\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Zm\u011bna l\u00e9\u010dby a p\u0159eru\u0161en\u00ed l\u00e9\u010dby v pr\u016fb\u011bhu 20 let ve skupin\u011b registr\u016f Big Multiple Sclerosis Data Network\u200b <\/a>\n <\/h2>\n \n

Tato studie se zam\u011b\u0159uje na popis p\u0159eru\u0161en\u00ed a ukon\u010den\u00ed l\u00e9\u010dby ve skupin\u011b registr\u016f Big Multiple Sclerosis Data Network. V r\u00e1mci t\u00e9to kohortov\u00e9 studie byla pod veden\u00edm prof. Jana Hillerta ze \u0161v\u00e9dsk\u00e9 univerzity Karolinska Institutet slou\u010dena data z p\u011bti klinick\u00fdch registr\u016f, kter\u00e9 pokr\u00fdvaj\u00ed obdob\u00ed 20 let….<\/p>\n

\n \n\n <\/i>\n \n 17. 3. 2021 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
\n\n
\n
\n \n \"Srovn\u00e1n\u00ed\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Srovn\u00e1n\u00ed terapie u pacient\u016f s RS po prvn\u00ed demyeliniza\u010dn\u00ed p\u0159\u00edhod\u011b v re\u00e1ln\u00e9 klinick\u00e9 praxi v \u010cesk\u00e9 republice: \u00dadaje z n\u00e1rodn\u00edho registru ReMuS <\/a>\n <\/h2>\n \n

Roztrou\u0161en\u00e1 skler\u00f3za (RS) je chronick\u00e9 z\u00e1n\u011btliv\u00e9 a neurodegenerativn\u00ed onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu. Po prvn\u00ed demyeliniza\u010dn\u00ed p\u0159\u00edhod\u011b se v \u010cesk\u00e9 republice u pacient\u016f s RS b\u011b\u017en\u011b pou\u017e\u00edvaj\u00ed dob\u0159e zaveden\u00e9 l\u00e9ky…<\/p>\n

\n \n\n <\/i>\n \n 12. 1. 2021 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Jak\u00e1\n <\/a>\n \n \n <\/div>\n\n
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\n \n Jak\u00e1 data nab\u00edz\u00ed celost\u00e1tn\u00ed registr pacient\u016f s roztrou\u0161enou skler\u00f3zou ReMuS? <\/a>\n <\/h2>\n \n

V p\u0159ehledov\u00e9m \u010dl\u00e1nku odborn\u00e9ho \u010dasopisu Neurologie pro praxi se odborn\u00e1 garantka registru ReMuS zam\u011b\u0159ila na p\u0159edstaven\u00ed registru ReMuS a zejm\u00e9na \u0161k\u00e1ly dat v n\u011bm obsa\u017een\u00fdch. \u010cl\u00e1nek nab\u00edz\u00ed tak\u00e9 pohled na zastoupen\u00ed pacient\u016f v jednotliv\u00fdch RS centrech \u010cesk\u00e9 republiky, v\u00fdvoj nasazov\u00e1n\u00ed vysoce \u00fa\u010dinn\u00fdch l\u00e9\u010div\u00fdch p\u0159\u00edpravk\u016f nebo velmi d\u016fle\u017eitou oblast…<\/p>\n

\n \n\n <\/i>\n \n 15. 10. 2020 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n
\n \n \"Registr\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Registr pacient\u016f s roztrou\u0161enou skler\u00f3zou ReMuS \u2013 v\u00fdznam dat u chronick\u00fdch onemocn\u011bn\u00ed <\/a>\n <\/h2>\n \n

Nov\u00fd \u010dl\u00e1nek v odborn\u00e9m \u010dasopisu Remedia p\u0159in\u00e1\u0161\u00ed informace o tom, co lze po \u0161esti letech fungov\u00e1n\u00ed naj\u00edt v datech registru pacient\u016f s roztrou\u0161enou skler\u00f3zou ReMuS i re\u00e1ln\u00e9 klinick\u00e9 praxi \u010cesk\u00e9 republiky. Od sv\u00e9ho vzniku jsou k dispozici z\u00e1znamy…<\/p>\n

\n \n\n <\/i>\n \n 21. 9. 2019 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Zah\u00e1jen\u00ed\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Zah\u00e1jen\u00ed prvn\u00ed chorobu modifikuj\u00edc\u00ed l\u00e9\u010dby u pacient\u016f s roztrou\u0161enou skler\u00f3zou v \u010cesk\u00e9 republice v letech 2013-2016: \u00dadaje z n\u00e1rodn\u00edho registru ReMuS\u200b <\/a>\n <\/h2>\n \n

Spr\u00e1vn\u00fd management l\u00e9\u010dby roztrou\u0161en\u00e9 skler\u00f3zy (RS) vy\u017eaduje zp\u011btnou vazbu z klinick\u00e9 praxe, kterou poskytuj\u00ed registry. Tento \u010dl\u00e1nek se zam\u011b\u0159uje na p\u0159edstaven\u00ed \u010desk\u00e9ho n\u00e1rodn\u00edho registru roztrou\u0161en\u00e9 skler\u00f3zy, ReMuS, a zkoum\u00e1 dostupnost a vyu\u017e\u00edv\u00e1n\u00ed l\u00e9k\u016f…<\/p>\n

\n \n\n <\/i>\n \n 3. 8. 2019 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n
\n \n \"Kam\n <\/a>\n \n \n <\/div>\n\n
\n \n \n \t\t\t\t\t\t\t\t\t\t

\n \n Kam jsme se posunuli za p\u011bt let existence registru ReMuS <\/a>\n <\/h2>\n \n

Za p\u011bt let sv\u00e9 existence se \u010desk\u00fd n\u00e1rodn\u00ed registr pacient\u016f s roztrou\u0161enou skler\u00f3zou, ReMuS, stal neoceniteln\u00fdm zdrojem dat pro klinickou praxi i v\u00fdzkum. Tento \u010dl\u00e1nek p\u0159in\u00e1\u0161\u00ed p\u0159ehled o tom, jak\u00fdm zp\u016fsobem se registr vyvinul od sv\u00e9ho vzniku v roce 2013…<\/p>\n

\n \n\n <\/i>\n \n 10. 12. 2018 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"Registry\n <\/a>\n \n \n <\/div>\n\n
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\n \n Registry roztrou\u0161en\u00e9 skler\u00f3zy v Evrop\u011b – Aktualizovan\u00fd p\u0159ehled <\/a>\n <\/h2>\n \n

V roce 2018 bylo provedeno aktualizovan\u00e9 mapov\u00e1n\u00ed registr\u016f roztrou\u0161en\u00e9 skler\u00f3zy (RS) v Evrop\u011b, kter\u00e9 nav\u00e1zalo na p\u0159edchoz\u00ed pr\u016fzkum z roku 2014. Tento pr\u016fzkum zahrnuje 19 registr\u016f, p\u0159ev\u00e1\u017en\u011b z Evropy, a poskytuje podrobn\u00e9 informace o organizaci, metod\u00e1ch sb\u011bru dat, kvalit\u011b kontroln\u00edch mechanism\u016f a financov\u00e1n\u00ed…<\/p>\n

\n \n\n <\/i>\n \n 4. 10. 2018 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
\n\n
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\n \n \"Srovn\u00e1n\u00ed\n <\/a>\n \n \n <\/div>\n\n
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\n \n Srovn\u00e1n\u00ed \u00fa\u010dinnosti subkut\u00e1nn\u011b pod\u00e1van\u00e9ho interferonu \u03b2-1a 44 \u03bcg, dimetyl fumar\u00e1tu a fingolimodu v re\u00e1ln\u00e9 klinick\u00e9 praxi \u2013 multicentrick\u00e1 observa\u010dn\u00ed studie <\/a>\n <\/h2>\n \n

Roztrou\u0161en\u00e1 skler\u00f3za (RS) je chronick\u00e9 z\u00e1n\u011btliv\u00e9 demyeliniza\u010dn\u00ed a neurodegenerativn\u00ed onemocn\u011bn\u00ed postihuj\u00edc\u00ed centr\u00e1ln\u00ed nervov\u00fd syst\u00e9m. Interferon (IFN) \u03b2-1a 44 \u03bcg, dimethyl fumar\u00e1t (DMF) a fingolimod jsou zaveden\u00e9 l\u00e9ky pro l\u00e9\u010dbu relaps-remituj\u00edc\u00ed RS (RR RS). C\u00edlem tohoto projektu, kter\u00fd zahrnuje anal\u00fdzu dat z registru ReMuS, bylo porovnat…<\/p>\n

\n \n\n <\/i>\n \n 7. 6. 2018 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
\n \n \n P\u0159e\u010d\u00edst v\u00edce <\/a>\n <\/div>\n <\/div>\n <\/div>\n \n <\/div>\t\t\t\t\n\n
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\n \n \"ReMuS\n <\/a>\n \n \n <\/div>\n\n
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\n \n ReMuS \u2013 \u010desk\u00fd celost\u00e1tn\u00ed registr pacient\u016f s roztrou\u0161enou skler\u00f3zou <\/a>\n <\/h2>\n \n

\u010cl\u00e1nek doc. Dany Hor\u00e1kov\u00e9 publikovan\u00fd v \u010dasopisu Multiple Sclerosis News nab\u00edz\u00ed podrobn\u00fd pohled na vznik a v\u00fdvoj \u010desk\u00e9ho celost\u00e1tn\u00edho registru pacient\u016f s roztrou\u0161enou skler\u00f3zou, ReMuS, od jeho zalo\u017een\u00ed v roce 2013. \u010cten\u00e1\u0159 zde nalezne informace o struktu\u0159e registru, procesu sb\u011bru dat, a…<\/p>\n

\n \n\n <\/i>\n \n 15. 11. 2016 <\/span>\n <\/span>\n \n\n \n\t\t\t\t\t\t\t\tpublikace<\/a>\n <\/span>\n <\/div>\n
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